Showing posts with label amazing friends and family. Show all posts
Showing posts with label amazing friends and family. Show all posts

Wednesday, October 3, 2012

Thanksgiving in the Months of August & September

August and September 2012 will be a months I never forget.  The whole of my summer was pretty intense and wacky, but I have to say the end of this summer may be what sticks out most.

You've probably read some of the insanity that's gone on in my life for the past couple of months, but what I am learning to focus on are the ridiculous number of things and people and situations that God has blessed me through.  This is my Thanksgiving summer.  Truly, my thanksgiving summer.

So here's what I'm thankful for (in no particular order):
  • My insanely supportive family who have done everything from visiting me in the hospital every evening I was there to making me tea to carrying things for me (which I'm still not allowed to do) to praying for me to making me laugh.  They're wonderful.
  • Giant water bottles I got at the hospital.  They're huge and they keep everything cold for a long, long time.  I love it.
  • Morgan Glawe.  Honestly, I can't thank her enough for her support, encouragement, book lending, gifts, and time.  Morgo, you make me happy.
  • Amber, Kimmieboo, Heather, Hilary, and Regina.  For the prayer, support, laughter, and for Hil busting me out of the hospital to bring me home.
  • My iPod (thanks, as always, Carson...this thing is fantastic and continues to survive so much).  It kept me sane several different nights at the hospital when the sounds and people in other rooms were too much for me to deal with anymore, and has been a wonderful thing to keep me sane here at home too.
  • Jordan Durham.  For reminding me that God always works for the good, telling me that I won't always need reminders to be patient, making me laugh, and being one of the best friends I have ever had.
  • The internet.  For allowing me to talk to Nikky even though she's been in China through most of the past month.  
  • Nikky Wu.  My best friend, for praying for me even when she was half the world away, for making me one of the best care packages I have ever received, and for always being, well...the BEST.
  • Kimzipan and Jay for bringing me the circle-a-word puzzle book, laughter, and magazine with Ryan Reynolds right there on the cover the night I got home from the second round of hospitalization (I am glad I have you in my life, and I'm glad you're together...it needed to be).
  • Foods that are healthy and still taste good which make dealing with pancreatitis and gall stones much, much easier.
  • My church families (IL, MI, OH, GA, MO, NB)...God continues to blow me away through your kindness, prayers, love, support, and generosity.
  • Hope.  I would not be able to do any of this without God constantly showing me that their is always hope.
  • Jake and Amber's continued love, support, and reminding me that I have a place to move into when I'm ready (and thanks for taking care of those couple boxes of books, I can't wait to live with them again).
  • Amanda and Rich.  For all the prayer and kind words on top of the sweet care package full of tea and joy and socks.  It meant the world.
  • Barf bags.
  • The insane flexibility of my office in working with my terrible health and crazy number of doctor's appointments.  This is terrible for me, but it's been no picnic for them either.
  • Having a fan next to my bed at night while here at home because I'm finding the sound gets me to sleep when nothing else seems to.
  • Kevin Rogers.  He may not know it (he may never know it really), but he made the day of my surgery, and going down for my surgery so much less scary.  I know this wasn't an insanely terrifying surgery and it's fairly common, but with everything else that had gone wrong lately...his belief that my surgeon was a good guy, making me laugh, and telling me it was all going to go just fine...I believed it.  I am forever grateful.
  • Texting.  I would have gone insane while in the hospital without it.  Well, without texting AND cable TV (the Travel and Food networks really are addictive).
  • Books.  I find myself reading a lot lately.  Fact and fiction.  I am grateful for every writer ready and willing to put pen to paper and tell us how the story goes.  I have needed that a lot lately for my little mental vacations (special thanks to Jennifer Crusie and Bob Mayer for writing both Agnes & the Hitman and Don't Look Down.  Please collaborate on many more books so I will have new favorites to read and new reasons to laugh; I need them).
  • Knowing I'm healing every day, even when I feel lousy.
  • Feeling that I am truly growing closer to God each and every day of this and finding that it's all worthwhile because of that.
Mind you, this is a very abbreviated list, but it's a start.  I am so thankful.  I hope Thanksgiving is something I can keep going in October too.  Let's see where God takes all of this.

What are you thankful for?

Wednesday, September 5, 2012

Something's Gotta Give (And I Think It's Me)

Today is nowhere close to over, and it already feels like both an eternity and a blink.

I went and saw the surgeon today.  My mom went with me (because she's wonderful) and as we were driving up we were talking.  I told her I had had a dream where Dr. Soni (my surgeon) told me that he didn't want to do surgery till after Christmas, and in the dream I had immediately wanted to kill him with his own surgical implements.

My mom laughed, but then turned very serious and said, "I do think we should be prepared for the worst."
"Like what?" I replied, "Like he won't let me have surgery until November?  I mean, you don't seriously think he'd wait till after Christmas...because if he did that, I might really have to kill him."
"No, no.  I don't think he'll wait that long, but it may not be as soon as you want. Or he may tell you that they want to drain that cyst before they'll do surgery..." she paused, and I knew exactly where she was heading. "I know you really didn't like it when they talked about having to drain that before.  Especially since you know that means-"
"I know what it means, but they would have to knock me out or something.  There is no way I would let them do that with me conscious.  I would have to kill them if they did that, or at least hit someone in the face," I said to cut her off.  I didn't want to be thinking about the fact that them draining this cyst could very well mean that they would probably have to stick a great big needle in my stomach to drain the cyst.
"Maybe, but we just have to realize that this may not be something easy and that they may have options of how you can go about doing this."

This lead into a glorious conversation where I cried a lot because all I really want to do is move to Ohio.  I have been planning this move for the past several months.  I have been looking forward to moving in with Jake and Amber all this time, and had told my office that I would be leaving at the end of September.  I would be heading out and starting over and possibly actually proving to myself that I am, in fact, a real adult. Instead, things are being pushed back.  I will still move in with Jake and Amber, but now I have no firm ideas of when I will be healthy enough to move.  And this is what I told Mom.  I don't understand God's timing.  I know it's good, and that He's got better timing and plans than I have, but sometimes that doesn't make it easier, when all the plans and dreams you have been building towards feel like they're unraveling.  Especially when you already feel like you're a bit of a failure as adults go.

My wonderful mother told me that I was not a failure as an adult or otherwise.  That I am capable, that this will still work out, and that it may seem scary, but facing our fears helps us grow.  Not only do we grow, but sometimes facing those fears leads to even better things.  She told me she and my dad believed in me, and that they may not be able to always fix things, but they would never always do whatever they could to support me.  Things would work out.  God won't let me fall.

I don't know if you know this, but my parents are phenomenal people.

We finally got up to the surgeon's, and I went in and paid an exorbitant fee (because I am insane and did not get myself insurance the moment I turned 26) and signed papers and showed them my photo idea (apparently to prove that I am the only lunatic named Jaymin Cheatwood who would show up and pay a ton of money to have a surgical "consult").  Then we waited.  Sometime after I was supposed to actually have my appointment, a very sweet nurse named Maria came out and got me.

She did an initial couple of tests, weight, and had me reexplain how the heck I had gotten myself to the point of a surgical consult.  Then she told me Dr. Soni would be in shortly.  Another ten minutes or so pass, and then, lo and behold, who should appear but Dr. Soni (with his insanely long eye lashes, and incredibly messy hair, perhaps we wore a hat to work?) with Maria again to take notes.

After about 30 seconds of him poking around at my abdomen, he told me that he wanted to schedule me for another CT scan, and that he wanted me to see Dr. Ikenberry (the gastroenterologist).  He also wanted me to come back and see him after the CT scan.  He told me he really doesn't believe that the spots on my liver are cancer, but they'll still need to look at them again.  He also wants to see if the psuedocyst is going down at all and to make sure my pancreas is doing alright.  He said he really doesn't want to do surgery until the psuedocyst goes down a bit more (or they'll go in if I end up very sick), and if it doesn't, they'll have to go in and drain it.  Then he asked if I had any questions.  I really didn't.

My mom asked about recovery time from having my gall bladder removed.  He said he really didn't want to talk about the surgery and recovery time until we set up the actual procedure.  Dr. Soni seems to think that in roughly a month, when I see him next, that he'll be able to tell us more about all of that and get everything lined up.  He said they'll set up the CT scan for me, to make the appointment with Ikenberry, and that he'd see me in a month.

I spent less than 7 minutes will him, for a truly ridiculous price.  All this better be worth it.

So we left and headed home.  I told Mom that I had no idea how to feel about all of this.  Yes, they think I am healing, but I still have no idea when I'll get to have surgery.  This means I still have no idea about anything else too.

No idea when I will be feeling better.
No idea when I will get to move to Ohio.
No idea how I am going to pay for all of this.

No idea.

Mom handed me her phone and had me call Dad to tell him how things went, and as I am in the middle of telling him how frustrated I was that I paid a ridiculous (at least to me) sum of money to see a doctor that told me mostly what I had already heard, but not anything closer to me having surgery, and that I'd see him for maybe 7 minutes...Dad stops me and says, "I put $75 in your account."  He goes on to tell me that a beloved cousin had asked him to deposit money into my account to help with my expenses in all this.  I thanked him for the good news, told him I loved him, and got off the phone.

I ended up crying for the next 10 or so minutes.  I was just so overwhelmed by the love and kindness of someone who I already adore and respect so much...God's timing really is perfect.

I still don't know a lot of things about my future, immediate or otherwise, and I am still incredibly frustrated at some of this because I still don't feel like I have answers for something that should be so simple, but at the same time I know this: I am so blessed.

God is using the people I love and respect, along with acquaintances and a couple of strangers to show me that He loves me, and that He's got this under control.

Something's gotta give, obviously, and it needs to be me.

So here's my white flag God.  I surrender.  You've got to take care of this because clearly I cannot.



One last thing because I haven't done one any time recently, here is a list.

Favorite Things of This Very Moment (3:25 pm CST):

  • Kleenex
  • My Hawaiian Breeze fan
  • Writing thank you notes
  • Tall glasses of ice water and lemon
  • The bracelet Nikky made me at FUEL this year which I have been wearing all day
  • Mom's pep talks
  • My dad
  • Sleeping kitties (who are NOT on the table this time)
  • Surprises

Wednesday, August 29, 2012

God's Got This

I've been thinking the past couple of days about a lot of different things.

God has been very at work in my life and my heart.  I know he's always there, but sometimes I let life get busy enough that I forget to see where he's at work.

As I told you in a previous post, I've been very sick.  It's been a very challenging summer, but the past couple of weeks have been the worst.  I let go of someone I loved, my body betrayed me, and I thought I was going to have to put aside my dreams yet again.  It was tough and it was terrifying, but God works for the good of those who love him, and he tends to take all those things that I don't understand and untangles them.

I've spent a lot of time asking God to take from me my unbelief and help me see his faithfulness and love.  I've spent a lot of time reading my Bible and asking God to help me see the light at the end of this tunnel.  It's been a rough couple of weeks.

The beautiful thing is, God came through for me.  He always does.  He showed me that I am so loved.  I've had people I never expected to care ask about me, pray for me, get their whole church to pray for me, and ask if they could do anything to help.  He let one test lead to another to help my doctors figure out what was causing the real and worst part of my pain, and they're helping me fix this issue.  He's given me amazing friends who call and text and visit and encourage me.  He's shown me just how incredible my family is through their concern, the little acts of kindness, the phone calls, the texts, and my immediate family's willingness to eat a low-fat heart-healthy diet (even though I think they would prefer to eat normal food most of the time) without any real complaints.  I've gotten all kinds of cards and words of kindness.  The support is overwhelming.

picture by C. Ballard & J. L. Montgomery
I spoke to my office yesterday and was told that as long as my doctor says it's okay on Thursday, I can come back to work as early as Friday.  I would get to work however long I felt I could handle, so I won't have to worry about making myself overly tired.  This means I'll be able to earn a paycheck again, and that will give me a great deal of peace.  It still won't cover everything, but it will do a good deal to make me feel more at ease about the whole situation.

This also helped me see that though it may take a little longer than I wanted it to or hoped it would, I will still get to go to Ohio.  I am not going to have to abandon my dreams.  God will get me there, and Amber and Jake have been wonderful about keeping me excited.  Amber keeps talking about the things we'll do when I get there.  I need to pick a paint color for my room, and soon we'll be learning to knit and cooking together and trying to be a bit healthier about everything.  I will get to see Nikky and Yan and Conor on a regular basis.  So many people I love and so many things to look forward to.  My dreams are still going to come true.  God isn't asking me to give up my dreams, but to trust him with them.  I think I'm slowly learning to let him handle this.

And yes, I did give up someone I love, but I am learning, I can still wake up every morning and find the good in the day.  He was my world once, but he isn't anymore.  God's got my heart, and he's healing it quite nicely.  Better things are yet to come, and I'm going to trust God that some day in the not too distant future I will find myself in love with someone who won't walk away, but instead will love me right back.

God's got this.  It amazes me.  Despite all the craziness, I am falling more in love with God and life every day.  Today will be beautiful.

Monday, August 27, 2012

Saga: Blessings & Curses

Underwater Leaves by Jon H. Cheatwood
It's been a little while since I've written anything, and this time I actually have a valid excuse.  I have been (still am) incredibly sick.

About three weeks ago I scheduled a doctor's appointment because someone finally suggested that all the pain I was having, that I had been thinking were just crazy muscle spasms due to all the issues I had been having with my sciatic nerve, were actually being caused by my gall bladder.  So I called the doctor and made the appointment.

The next night I found myself up at 1:30 in the morning feeling like death.  I ended up ending an 18 year streak of not throwing up that night.  I started throwing up at 1:30 in the morning and didn't stop till probably 9 or so in the morning.  Anyone that knows me that throwing up is right up on the scale with needles as far as things that I both hate and am terrified of.  It was a horrible night.

I ended up moving up my appointment to that afternoon, and after speaking to my doctor, he got me some anti-nausea medication called Zofran (which is typically used for cancer patients going through Chemo, if that tells you anything about how lousy I was feeling) and set me up to get an ultra sound of my gall bladder, liver and pancreas.

So I spent the weekend feeling like I was dying, and ended up having to get off the Zofran because I had a really weird reaction to the medication.  That made life exciting.  My dad got to watch me completely fall apart because when I called the doctor's office to ask about the meds they told me I should go to the ER, and that scared me.  My dad, instead, had me call one of my best friends, Heather, who is going to nursing school to talk about the whole thing.  She helped me figure out some meds I could take to keep my stomach in check until I could actually talk to my doctor.  It made a huge difference in my outlook and helped me calm down exponentially, though she probably didn't realize that at all (thanks, Heather, you're the best).

My folks left to go shopping and I took a long nap.  When I woke up, my folks were back and my wonderful father had a gift for me: neon colored socks with hearts all over them.  They were perfect.  My mom told me later that when he saw them he told her he was going to buy them because he was hoping they would make me smile.  They hadn't seen me smile much in about 3 days at that point.  The socks worked.  They were so bright, and they were from my dad.  It was hard not to smile about something so sweet and small.  My dad is the best.

The rest of the weekend was pretty lousy because I was in so much pain.  Thankfully I didn't throw up anymore after that first night, but eating became really hard to want to do at all.

Tuesday I went and had my ultra sound.  Wednesday I found out I needed to have a CT scan because they had seen a couple spots on my liver that they couldn't identify, and they had seen gall stones, so I was going to need to have my gall bladder removed.  I was also told I needed to have a follow up appointment with my doctor so that I could be checked out after having the bad reaction to the Zofran.

I spent all Wednesday on the phone trying to get everything lined up to get my surgery done and the CT scan scheduled.  It was a nightmare because the surgeon couldn't see me until September 10th.  When you're in that much pain, all you end up doing is crying.  Or at least I did.  Between the price of all this and the length of time and all the tests and the fact I needed more tests because something else was wrong...it was a long day.

Thursday, Joel moved to Augustana for his freshman year of college.  I slept most of the day away.  I am so proud of Joel.  Honestly, what an awesome brother!

Friday, I went to the doctor and he explained that they wanted to get a better look at my liver because he just wanted to make sure everything was okay.  There was a very small chance the spots could be cancer, but he didn't believe they were dense enough.  After talking to him I felt much better, and he explained everything with the gall bladder, and told me I was fine after the Zofran.

I spent the weekend feeling sore, but feeling a little more hopeful.  Not only did I have the CT scan on Monday, but my doctor had gotten me in to see a surgeon that next Wednesday so I was moving along much better.

I don't know if you've ever had a CT scan, but the junk they make you drink is lousy.  I got lucky and they premixed it for me and it was an orange flavor that wasn't too bad.  It just has a really weird consistency, and you're not allowed to eat or drink anything for something like 14 hours prior to your scan, so I spent a lot of time wishing I could drink water.  And hoping I would never ever ever have to have another one of these.

The CT scan itself wasn't too bad except that I had to have an IV for it.  Thankfully I had a really wonderful nurse who made absolutely certain she could find a vein, and it was the least painful needle experience I have ever had.  She was really great.  It made life a lot less scary.

I was thrilled when we were done at the hospital and I got to come home and sleep.  Life was going alright.  I was hurting, but not too worried.  Then...my doctor called.  He said there was something wrong with my pancreas and that he wanted me to go to the ER.  He said he was going to call ahead so they would be expecting me.  Then he said he was going to call my mom.  I got off the phone with him and started crying and couldn't stop.  I didn't want to go to the ER or have anymore needles or have anyone else poking at me or have anymore tests done.  I wanted to take a nap.

But naps were not to be.  Not yet.

My mom came home and drove me up to the ER.  Thankfully I was smart enough to pack up my favorite blanket, toiletries, my Bible, iPod, my phone charger and a book.  I had a feeling they weren't going to let me leave which just scared me more.  Hospitals have always freaked me out, so this was a terrifying experience to walk into.

My dad met us at the hospital.  He said the ladies at work had kicked him out of the bank when he told them I was going to the ER.  I'm glad they sent him.  He made things seem a lot less scary.  I ended up in the ER for roughly 6 hours from the time I checked in at the desk until they finally told me they were going to send me up to a real room so they could do some observation.  They had determined that I have something called a psuedocyst on my pancreas which just means there is a pocket of water that has formed between my pancreas, the wall of my abdomen and my stomach.  It's causing a lot of pain, and my pancreas was swollen and they wanted to check on that.  The whole time I was in the ER I was told I couldn't drink anything because of the tests they were running on the blood they had already drawn (did I mention how much I hate needles, especially when I am already feeling sick to my stomach?).

They got me upstairs and checked in around 11 pm.  The room was nice, and my nurses were wonderful.  They told me I still couldn't have anything to eat or drink, but one of my nurses' told me she would bring me ice chips.  She was wonderful, and they made all the difference, especially since I was still pretty dehydrated from having to fast for the CT scan that morning.  My folks stayed with me until about 11:30 when I told them to go home because they had to drive home separately and they both needed to go to work in the morning, and they both looked like they were going to fall asleep.

As I said, my nurses were great, but one of them did draw blood at 4am.  Again, I am TERRIFIED of needles.  It was not a great experience.  It became the first of many, many times I would have blood drawn.  I ended up having an MRI that day (Tuesday) as well because they wanted another look at my liver.  As of now (almost a full week since the MRI), I still don't know what the results were.

I spent from Monday night till the early part of Thursday afternoon in the hospital.  During that time, I had my blood sugar taken at least twice a day.  My fingers have just recently healed, although I can still see where they pricked my fingers.  I got really good at dealing with that.  My nurses knew how freaked out I was by needles, so they talked through the whole process which did wonders.  They learned to do the same thing when they were drawing blood.  They also got use to me crying.  I did a pretty good job of holding it together, but when you're exhausted and on a lot of medication and scared because every doctor that comes in gives you little to nothing in the way of explanation as to what is happening to you and keeps throwing out the word cancer like it's no big deal...you end up a little rattled and terrified and emotional when they tell you they're going to take blood for roughly the 8th time in three and a half days and no one seems to know what they need all this blood for.  They did tell me that I have pancreatitis and that they couldn't do any surgery on my gall bladder until my pancreas heals a little bit.

They still haven't told me what's going on with my liver, but I was told I need to have yet another CT scan in roughly a month.  I hate CT scans.  I never want to have another one, but hopefully my regular doctor will be able to tell me why this is necessary and what the heck my MRI results were.  I just need to understand what is going on, and doctors at the hospital are pretty worthless for that.  Well, that's not entirely true, the doctor that takes care of the whole 9th floor at Swedes was pretty nice.  He tried to answer my questions and was very kind, but I still hated that whole process.  It was scary all the time.

The good parts of being in the hospital (because there are some): all of the nurses were wonderful.  They showed up as soon as I needed them and would do everything in their power to make my life easier.  They were wonderful angels.  I had some great visitors.  Morgan and Adam came to visit me on Tuesday and sat with me for a couple of hours.  Morgan brought me this adorable bright colored and crazy patterned frog and a big "Get Well" balloon.  It was beautiful and the nurses all loved it.  It brought a lot of color to my room, and it was much in need of that.  Kayla sent me the first of the Hunger Games books and a note.  I got a couple notes, several phone calls, and my family came up every evening to sit with me and bring me whatever I needed.  Kathie and Hilary came on their lunch break on Wednesday which was really nice and completely unexpected.  Broke up a very gray day that I was very tired of.   Morgan brought our friend Alyssa and her little girl Kaylee up on Wednesday night (I think), and Kaylee ended up loving my dad.  Morgan brought me more books.  Morgan was been my angel in all of this.  Such an awesome friend.

Thursday they sent me home with some pain meds and a prescription to help with the pancreatitis.  I was so excited to be home and away from needles.  I have bruises all over my arms from needles.  I still hurt, but I am healing.  I spent the whole weekend taking a lot of naps, and doing a lot of nothing.  I am now on a low-fat heart-healthy diet until I get my gall bladder out, and my wonderful family are all participating in this with me.  They make my life so much easier.

Jay came to visit me on Friday night, and that was great.  He had a lot of things dumped on him because all of this still has me extremely stressed out.  Especially everything with my liver and the fact that I have no idea how I am going to be able to financially recover from all of this (and yes, I HAVE applied for assistance through the hospital).  I am grateful for his willingness to listen, and deal with my fears.  He's a good man.

Sunday, my family didn't want to wake me up to go to Sunday School, and I ended up waking up just before church was supposed to start, so I missed church.  I have every intention of being back next weekend.  My mom said she just couldn't justify waking me up when she knows I need the sleep to heal, and I have just started sleeping through the night.  The amazing thing  was that I got a big envelope full of get well letters from my kids in my Sunday school class and my fellow teachers.  The cards were beautiful, even if the glue was still wet on some of them, and I loved every single one of them.  My class is wonderful.  It made my day.

I slept through a lot of yesterday afternoon, and slept pretty well last night.  I am going to be calling my office tomorrow and see if there is a way I can come in part time for awhile.  Hopefully things will go well, and I will get to actually do some work.  It would be nice.  I could make a little money, and then come home and take naps like I need.

Anyway...I go to the doctor, as I said, on Thursday for a check up (maybe I didn't say that...this is a long post, it's hard to remember anymore) and to have a couple tests run to make sure everything is healing smoothly.  I met my surgeon while I was in the hospital.  I am sure he's an excellent surgeon, but he seemed a bit like a cold hearted weasel as well, so I'm not terribly excited about going to him for my consult.  On the other hand, if I go in on the 5th and he tells me they want to do surgery soon, he may be my new best friend. I just want to get this thing out of me and keep healing.

Please keep praying about all of this, and I will attempt to do a better job of keeping you posted on what is going on.  Life is a bit of a crazy mess, but God is definitely showing me again and again how blessed I am with the amazing people I love and who love me.  I'll get through this.

I love you.  Thanks for being there.